Parenting is demanding, even under the best circumstances. Add Short Bowel Syndrome (SBS) or another chronic GI condition into the mix, and the challenges can feel overwhelming.
- How do you balance your own medical needs while raising children?
- How do you handle fatigue, dietary restrictions, or medical treatments while being present for your kids?
- How do you explain your condition to young children in a way they can understand?
The truth is, being a great parent doesn’t mean being perfect. It means finding balance, asking for help when needed, and giving yourself grace.
In this blog, we’ll explore:
- How to manage fatigue and prioritize self-care while parenting
- Ways to talk to your kids about your condition
- Parenting hacks for meal prep, energy conservation, and daily routines
- How to involve your support system & avoid burnout
You can be an amazing parent while living with a chronic illness—it just requires a different kind of strength.
Managing Fatigue & Prioritizing Self-Care as a Parent
1. Accept That Rest is Productive
Parenting with SBS or any chronic GI condition means your energy is a limited resource. But resting isn’t laziness—it’s a necessary part of staying strong for your family.
- Prioritize rest like you would any other medical treatment.
- Give yourself permission to nap or take breaks when needed.
- Involve your kids in quiet activities when you’re low on energy.
Tip: When energy is low, opt for ‘lazy parenting’ strategies—snuggle up for a movie, read books, or do crafts together instead of high-energy activities.
2. Find Energy Conservation Parenting Hacks
- Use batch cooking or meal prep services to reduce time in the kitchen.
- Set up independent play zones so kids can entertain themselves when you need rest.
- Keep essential items within arm’s reach (diapers, snacks, toys) to limit unnecessary movement.
Tip: Teach older kids age-appropriate independence—they can help grab snacks, pick up toys, or bring you water when needed.
Learn More About Fatigue Management: The Mighty – Parenting with Chronic Illness
Talking to Your Kids About Your Condition
Many parents struggle with how much to share about their health with their children. Kids are more resilient than we think—and honesty, when done appropriately, helps them feel safe and informed.
1. Keep It Age-Appropriate
- Young Children (Ages 3-7): Use simple language. “Mommy’s tummy doesn’t work like other people’s, so she needs extra medicine and rest.”
- Older Kids (Ages 8-12): Explain in more detail, but focus on what they need to know.
- Teenagers: Be open—let them ask questions and process at their own pace.
Tip: Reassure kids that your condition isn’t their responsibility—they are loved, safe, and cared for.
Support for Kids with Chronically Ill Parents: National Alliance for Caregiving
2. Answering Tough Questions Kids May Ask
- “Are you going to be okay?”
✔ Honest but reassuring answer: “Sometimes I don’t feel great, but my doctors are helping me. I have good days and bad days, but I love you no matter what.” - “Why can’t you play with me right now?”
✔ Set expectations: “I need to rest for a little while, but we’ll do something fun later!” - “Can I catch what you have?”
✔ Clarify: “Nope! It’s not something you can catch like a cold. My body just works a little differently.”
Tip: Kids pick up on your energy—if you’re calm and confident about your condition, they will feel more secure.
How to Talk to Kids About a Parent’s Illness: KidsHealth
Meal Planning & Nutrition Hacks for Parents with GI Conditions
1. Meal Prep for Energy Conservation
- Batch cook & freeze meals for busy or low-energy days.
- Use slow cookers or instant pots to reduce hands-on cooking time.
- Meal delivery services can ease food preparation if budget allows.
Tip: Simplify meals with build-your-own options—set up a taco bar, salad station, or smoothie prep to let everyone customize without extra work.
Avoiding Caregiver Burnout & Asking for Help
1. Build a Support System
- Ask family or friends for specific help (picking up groceries, watching the kids for an hour).
- Join a local or online support group for parents with chronic illnesses.
- Consider hiring a babysitter or mother’s helper for extra hands when needed.
Find Parent Support Groups: Global Genes Rare Parent Advocacy
Conclusion: You Are Doing an Amazing Job
- Prioritize your health without guilt—it makes you a stronger parent.
- Communicate openly with your kids in a way they can understand.
- Lean on your support system, and don’t hesitate to ask for help.
